This site uses cookies. By continuing to browse the site you are agreeing to our use of cookies. Find out more here.
British Porphyria Association
Education / Support / Research

About the BPA

The British Porphyria Association (BPA) was established in 1999 by a group of patients and relatives who had experienced isolation and difficulties due to their diagnosis, and had found there to be a general lack of understanding and assistance available. 

 

The BPA became a registered charity in 2001 and is run by a committee of volunteers.

What does the BPA aim to do?

 

The BPA aims to:

 

  - Educate via newsletters, leaflets, open days and web information.

 

  - Support those who feel isolated via helplines

 

  - Provide helpful contacts with doctors/specialists.

 

  - Provide a grant/aid fund through which members can apply for help with certain costs incurred because of the condition.

 

  - Keep patients up to date with new research.

 

  - Educate doctors and medical staff in order to improve their understanding of the condition.

 

  - Provide doctors with links to other medical professionals.

 

  - Provide funding for new research.

 

  - Encourage research establishments to consider porphyria for research.

 

YOUR FEEDBACK
British Porphyria Association
136 Devonshire Rd
Durham City
DH1 2BL