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Goldenhar UK
Support for families effected by Goldenhar Syndrome
About Us

Goldenhar UK are a small UK based charity set up to help and support families affected by Goldenhar Syndrome, Hemifacial Microsomia and Microtia.

We are run solely by families and volunteers affected by this condition and aim to: 

  • Put families in touch with other families who have children or family members with similar problems.
  • Give parents and patients viewpoints about the syndrome through a regular newsletter.
  • Provide a link to other organisations who might be able to help families.
  • Pass on some general information from specialists in the medical profession.
  • Offer practical support for common issues.
Family Days

Our family days are our main event. Each year our members get together in a different city and we invite a variety of guests. The purpose of the family day is to meet other families who have very similar problems – we chat, we eat, we drink and we chat some more. Some of us make lasting friendships but most importantly we support each other.

Talking to other families and parents who are going through the same experiences can make all the difference. We’re a support network.

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