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The Dystonia Society

The Society was established to promote the welfare of people who are affected by any form of the neurological movement disorder known as dystonia. 


The Society aims to do this by promoting awareness of the disorder, by supporting research and by undertaking welfare initiatives. It does this on a national level and through its network of local support groups.

Living with Dystonia


Whether you have been diagnosed with dystonia yourself, or you know someone who has, our services can make a real difference to you.


These include: 



Our telephone Helpline is available weekdays from 10am to 4pm to members, non-members and healthcare professionals.

Call 0845 458 6322 or 020 7793 3658 or email



Our Advocacy Service can make your voice heard if you are being turned down for treatments, benefits or employment support



This is your chance to view or join in discussions about anything to do with living with dystonia


Local Groups   

Find out about Support Groups in your area

Click here for details of the London, SW London & Surrey Support Group


Coping with dystonia

Find out about self-help techniques, sensory tricks, pain management and complementary medicines to make living with dystonia easier


Benefits and Rights       

Find out about your rights and information on statutory benefits


Parents and Carers    

Information for parents or carers of children living with dystonia



Finding Us

Dystonia Society
2nd Floor 89 Albert Embankment
Vauxhall, London