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The Dystonia Society

The Society was established to promote the welfare of people who are affected by any form of the neurological movement disorder known as dystonia. 

 

The Society aims to do this by promoting awareness of the disorder, by supporting research and by undertaking welfare initiatives. It does this on a national level and through its network of local support groups.

Living with Dystonia

 

Whether you have been diagnosed with dystonia yourself, or you know someone who has, our services can make a real difference to you.

 

These include: 

 

Helpline

Our telephone Helpline is available weekdays from 10am to 4pm to members, non-members and healthcare professionals.

Call 0845 458 6322 or 020 7793 3658 or email support@dystonia.org.uk

 

Advocacy 

Our Advocacy Service can make your voice heard if you are being turned down for treatments, benefits or employment support

 

Forum

This is your chance to view or join in discussions about anything to do with living with dystonia

 

Local Groups   

Find out about Support Groups in your area

Click here for details of the London, SW London & Surrey Support Group

 

Coping with dystonia

Find out about self-help techniques, sensory tricks, pain management and complementary medicines to make living with dystonia easier

 

Benefits and Rights       

Find out about your rights and information on statutory benefits

 

Parents and Carers    

Information for parents or carers of children living with dystonia

 

YOUR FEEDBACK

Finding Us

Dystonia Society
2nd Floor 89 Albert Embankment
Vauxhall, London
SE1 7TP