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Beckwith-Wiedemann Syndrome
Support Group

What is BWS?

  • Beckwith-Wiedemann Syndrome (BWS) is an overgrowth disorder.
  • The syndrome is usually sporadic, but may be inherited.
  • The incidence of BWS has been reported as approximately 1:15,000 births
  • The clinical picture of this syndrome can vary from mildly to greatly affected.
  • The most common features are a large tongue, an abdominal wall defect and increased growth, but there are many others.
  • These children are at risk for developing various types of tumours.

Visit our website for further information about Beckwith-Wiedemann Syndrome

BWS Support Group – UK

 

This was started in 1990 by a group of parents with BWS children to share problems and information and to act as a self-help group. It aims to promote both public and professional awareness of BWS and to support and encourage research. The group has links with BWS groups in Holland and America. 

 

For further information about the group please contact:

 

Bob and Gill Baker

Beckwith Wiedemann Support Group

The Drum and Monkey

Hazelbury Bryan

Dorset DT10 2EE

 

Tel: 01258 817573 (evenings) 07889 211000 (mobile)

Fax: 01202 205325

E-mail: r.baker881@btinternet.com


Or click here to connect with our online community. 


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Finding Us

Beckwith Wiedemann Support Group
The Drum and Monkey
Hazelbury Bryan, Dorset
DT10 2FF