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British Porphyria Association
Education / Support / Research

About the BPA

The British Porphyria Association (BPA) was established in 1999 by a group of patients and relatives who had experienced isolation and difficulties due to their diagnosis, and had found there to be a general lack of understanding and assistance available. 


The BPA became a registered charity in 2001 and is run by a committee of volunteers.

What does the BPA aim to do?


The BPA aims to:


  - Educate via newsletters, leaflets, open days and web information.


  - Support those who feel isolated via helplines


  - Provide helpful contacts with doctors/specialists.


  - Provide a grant/aid fund through which members can apply for help with certain costs incurred because of the condition.


  - Keep patients up to date with new research.


  - Educate doctors and medical staff in order to improve their understanding of the condition.


  - Provide doctors with links to other medical professionals.


  - Provide funding for new research.


  - Encourage research establishments to consider porphyria for research.


British Porphyria Association
136 Devonshire Rd
Durham City